I found out about Tyler's heart condition when I was 18 weeks pregnant. It came as a shock when my midwife called me up to give me the ultrasound report and asked that my husband Jason pick up a phone as well. We got the news together. Tyler had Hypoplastic Left Heart Syndrome (HLHS) The simple explanation is that he only developed a right side of the heart and not a left side. The sad thing was that the left side was not going to grow as my pregnancy continued.
We were given 4 options.
1) Terminate the pregnancy
2) Go full term, give birth then take him home and watch him die
3) Heart transplant
4) Or a three stage surgery option
We chose surgery..
Tyler had his first open heart surgery done when he was only 5 days old at Sick Kids Hospital. We remained vigil at his side daily. There were many ups and downs and we were always waiting for the next shoe to drop but he made it through the surgery. After 4 weeks of being in the hospital he was well enough to go home. His next surgery was supposed to be when he was 6 months old.
He never made it that far...
We had three precious weeks with him at home. I took him shopping, he got to see family, he smiled, for all intents and purposes he was a happy baby. Although he did have some feeding issues and required daily medication we were enjoying being parents,and the needles and NG tubes became a part of our routine.
Sadly when Tyler was exactly seven weeks old, a Saturday morning that I will relive again and again, my son Tyler stopped breathing in my arms.
911 was called but there was nothing anyone could do, he was gone.
My baby boy Tyler, I will hold you in my heart forever............
Love: Your Mommy,